Papers for TBIBank

The following articles present measures recommended for TBI research by the pediatric and adult Interagency Workgroups on Common Data Elements (CDE) in Traumatic Brain Injury (TBI) Research. The project is described at this link: http://www.commondataelements.ninds.nih.gov/TBI.aspx

The aim of the CDE workgroups was to identify a core set of measures and procedures for use in TBI research, to facilitate comparison and aggregation of data across studies and investigators. The CDE papers include recommendations for demographic and clinical variables, biomarkers, imaging data, and outcomes measures.

CDE Papers with Recommended Outcome Data Elements:

• Wilde, E. A., Whiteneck, G. G., Bogner, J., Bushnik, T., Cifu, D. X., Dikmen, S., et al. (2010). Recommendations for the use of common outcome measures in traumatic brain injury research. Arch Phys Med Rehabil, 91(11), 1650-1660 e1617. NOTE: The RAVL has been replaced by the CVLT since publication of this paper.
• McCauley, S. R., Wilde, E. A., HIcks, R., Anderson, V. A., Bedell, G., Beers, S. R., et al. (2011). Recommendations for the use of common outcome measures in pediatric traumatic brain injury research. Journal of Neurotrauma, In press.

CDE Papers with Recommended Demographic Data Elements

• Mass, A. et al. (2010) Common data elements for traumatic brain injury: Recommendations from the Interagency Working Group on Demographics and Clinical Assessment. Arch Phys Med Rehabil, 91.
• Pediatric CDE recommendations are available as ePubs ahead of print in J Neurotrauma June 2011.

In addition to these CDE papers, we would like to call attention to these materials:

Review papers:

• Biddle, K. R., McCabe, A., & Bliss, L. S. (1996). Narrative skills following traumatic brain injury in children and adults. Journal of Communication Disorders, 29, 447-469.
• Coelho, C. A. (1995). Discourse production deficits following traumatic brain injury: a critical review of the recent literature. Aphasiology, 9(5), 409-429.
• Snow, P. C., & Douglas, J. M. (2000). Conceptual and methodological challenges in discourse assessment with TBI speakers: towards an understanding. Brain Injury, 10(5), 397-415.

An example pediatric paper:

• Chapman, S. B., Gamino, J. F., Cook, L. G., Hanten, G., Li, X., & Levin, H. S. (2006). Impaired discourse gist and working memory in children after brain injury. Brain Lang, 97(2), 178-188.

Examples of macro- vs. micro-level analyses:

• Chapman, S. B., Sparks, G., Levin, H. S., Dennis, M., Roncadin, C., Zhang, L., et al. (2004). Discourse macrolevel processing after severe pediatric traumatic brain injury. Developmental Neuropsychology, 25(1-2), 37-60.
• Coelho, C. A., Grela, B., Corso, M., Gamble, A., & Feinn, R. (2005). Microlinguistic deficits in the narrative discourse of adults with traumatic brain injury. Brain Injury, 19(13), 1139-1145.

Elicitation tasks/genres:

• Hengst, J. A., & Duff, M. C. (2007). Clinicians as communication partners: Developing a mediated discourse elicitation protocol. Topics in Language Disorders, 27(1), 37-49.
• Jorgensen, M., & Togher, L. (2009). Narrative after traumatic brain injury: a comparison of monologic and jointly-produced discourse. Brain Inj, 23(9), 727-740. (had to sneak in one of Leanne's)
• Wilson, B. M., & Proctor, A. (2002). Written discourse of adolescents with closed head injury. Brain Injury, 16(11), 1011-1024.

Novel/atypical measures:

• Stronach, S. T., & Turkstra, L. S. (2008). Theory of Mind and Use of Cognitive State Terms by Adolescents with Traumatic Brain Injury. Aphasiology, 22(10), 1054-1070.